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Need Advice
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7
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3062
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September 11, 2015
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What is the nutritious diet of Ald patients
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1
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2575
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August 29, 2015
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New ALD diagnoses
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13
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3014
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May 26, 2015
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So, what should I expect next
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2
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2597
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April 22, 2015
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Carriers
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1
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2787
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December 20, 2014
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CA Governor Jerry Brown Signed Bill to Screen Newborns for ALD September 2014
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0
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2430
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November 25, 2014
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How is everyone?
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8
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2735
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November 22, 2014
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FYI: SCT trial in Boston, UCLA, and MN is still recruiting
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0
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2269
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November 22, 2014
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How to handle the news
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14
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2814
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September 22, 2014
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PICC Line Arm from Care + Wear
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0
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2387
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September 4, 2014
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Telemedicine Patient Education
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0
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2219
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August 31, 2014
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Do you shop online, especially at amazon? your usual purchases can help ben's friends at no cost to you!
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0
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2106
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August 25, 2014
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Sean Vitka & Blue Redefined Patient Organization Sponsors Ben's Friends
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1
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2177
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July 23, 2014
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Ben's Friend Partnership with PicnicHealth - Electronic Medical Records for Patients With Rare Diseases
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0
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1617
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July 5, 2014
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If You Could Choose 2 New Things For Your Support Group What Would They Be?
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0
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1951
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June 27, 2014
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Results from Ben's Friends Survey
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0
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2003
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June 22, 2014
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New Ben’s Friends Facebook Page for Caregivers
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0
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1979
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June 5, 2014
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Congratulations, Ben's Friends!
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0
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2034
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May 4, 2014
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Revised criteria for evaluating medical disorders
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0
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1963
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April 30, 2014
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Ben's Friends Member Survey
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1
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2075
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March 23, 2014
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Is anyone participating in the Starbeam Study for gene therapy for CCALD?
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0
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1962
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March 3, 2014
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ALD Memorial Forum
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0
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1998
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March 1, 2014
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Ben’s Friends Patient Communities is now officially a 501(c3) non-profit approved by the IRS as of February 9, 2014!
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0
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2096
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February 25, 2014
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Nobody knows
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3
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2367
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February 20, 2014
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Newborn Screening in CA
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1
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2070
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February 18, 2014
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Tip of the Cap to Hank "Papa" McFadden
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0
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2000
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February 4, 2014
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Call out for volunteers to appear in a major TV documentary series
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0
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1980
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February 2, 2014
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Ben's Friends Jan 2014 Fundraising Update
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0
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2026
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January 22, 2014
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The Solution to Diagnostic Delay May Be Closer Than We Think
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0
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1998
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January 7, 2014
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Wonderful Wordpress & Stripe Developer - Naomi at Gravity Plus Who Made Our Fundraising Possible
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0
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2025
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January 7, 2014
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