Category Topics

Welcome

AdrenoleukodystrophySupport.org is a dedicated patient-to-patient support community for families affected by Adrenoleukodystrophy. Adrenoleukodystrophy (ALD) is a rare, genetic disorder that leads to brain damage and failure of the adrenal glands. It affects the body’s nervous system, causing the weakening and failure of the nerve impulse; thus leading to disability.
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Symptoms and Treatments

Share to us the treatments that had helped you resolve your symptoms.
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Support

Feeling down? Need to rant? This is the place!
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General

Join our open discussion forum for patients, friends and families affected with ALD.
We love to hear you stories and information about treatments, symptoms and side effects.
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Bens Friends

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
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Caregivers

Anyone whose life has been touched by a rare disease is welcome in a Ben’s Friends community. Most of our members are patients, but we have spouses and parents, besties and caregivers here as well.
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