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Welcome is a dedicated patient-to-patient support community for families affected by Adrenoleukodystrophy. Adrenoleukodystrophy (ALD) is a rare, genetic disorder that leads to brain damage and failure of the adrenal glands. It affects the body’s nervous system, causing the weakening and failure of the nerve impulse; thus leading to disability.

Symptoms and Treatments

Share to us the treatments that had helped you resolve your symptoms.


Feeling down? Need to rant? This is the place!


Join our open discussion forum for patients, friends and families affected with ALD.
We love to hear you stories and information about treatments, symptoms and side effects.

Bens Friends

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.


Anyone whose life has been touched by a rare disease is welcome in a Ben’s Friends community. Most of our members are patients, but we have spouses and parents, besties and caregivers here as well.